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Caregiver Forum

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Pinned by Pat's Gameplan
68
Welcome to the Caregiver Forum!
This is the place to connect with others who are on the same caregiver journey as you. Here, you can share your experiences, find support, or just chat with others who truly understand the hardship and, yes, even the occasional joy of being a caregiver. This community is here to provide you with the emotional support and practical advice you need. Feel free to ask questions, share your stories, and offer advice based on your own experiences. Remember, you are not alone on this journey. Our f... more
Posted by: Pat's Gameplan (12)
Showing 41 - 50 of 59 active discussions
6
Shoutout to the Resources page on this website
I've been searching all over to find resources to help us, and the resources page on this site is EXACTLY what I have been looking for. The Community Resource Finder has connected us locally. Thank you for posting these community resources. https://www.communityresourcefinder.org/ProviderSearch/
Posted by: Tabitha Stevens on March 26th, 2025 (2)
5
Is it about control? Even now? Tips to manage?
I'm caring for my father-in-law. At first, I was involving him in all of the medical and care decisions. I believed this was important, and it empowered him. Currently, I have been doing this less. This is due to his ability to retain and comprehend the situation as a whole. This has caused a "riff" between us, one that he does seem to remember pretty well, even when he can't remember other things. How much of this is entrenched in his ability to perceive he has control of the situation, me and... more
Posted by: Dale Teague on March 17th, 2025 (0)
6
When to cancel the cell phone line
Hey gang, serious question. I am a caregiver for my 77 year old father, and he is answering every call on his cell phone and often giving his credit card and personal information out. I know part of it is that he is lonely, but I also know he's been taken advantage of by spam calls and fraudsters several times as well. We have a stack of bank disputes. I know his independence is tied to his cell, and he doesn't have a lot else. Is this the time to cancel his cell plan?
Posted by: Chrissy Thompson on March 12th, 2025 (3)
17
Struggling to Keep Up: A Caregiver's Journey
Hi, I’m Marissa Simpson, and I’m the primary caregiver for my husband, Ryan, who was diagnosed with early onset dementia last year at the age of 52. The diagnosis hit us like a thunderbolt, and since then, each day presents new challenges—from managing his unpredictable mood swings to trying to keep up with his gradually fading memory. I feel overwhelmed juggling work, home responsibilities, and the care that Ryan needs, especially as his condition makes simple tasks like remembering names or da... more
Posted by: Marissa Simpson on February 15th, 2025 (1)
20
Letting go every single day
Hi. I am a caregiver for my uncle, going on almost 2 years now. I wanted to share a trick I learned a few months back that really seems to help me. Its called "quitting". Every day, at the end of the day I fully quit. I resign. I finish. With this trick I am able to sleep at night, and when I wake up I choose to start again. Take your power back. I hope this helps someone like it's helped me. Take care of yourselves guys.
Posted by: Zander Thompson on February 11th, 2025 (3)
9
Wouldn't change a thing - Caregiving is difficult, but has its rewards
Caring for my father through his Alzheimer's journey has been one of the hardest challenges of my life. Some days are filled with frustration, confusion, and sadness, but I wouldn’t change a thing. The moments of clarity, when he remembers something from the past or when we share a laugh over something small, are priceless. It’s been a lesson in patience, resilience, and the importance of living in the moment. Though I often feel overwhelmed, the bond we’ve strengthened through this experience i... more
Posted by: Derek Thomas on February 3rd, 2025 (1)
13
Caregiving is a lonely place, how do you beat it?
I've been a caregiver for my mother in law for 6 and a half months, and I have to say, it's a very lonely place to be. I can't imagine doing this without the internet. Doctors appointments are all I seem to have the time for. This site, and community is a bigger ray of light than people realize. What are other caregivers doing to beat this loneliness?
Posted by: Sandi Rogers on January 14th, 2025 (2)
28
Just want to say Thank You!
This site, resources and group has given me a lot of hope over the past 3 months! The video stories are beyond fantastic.
Posted by: Doris M Smith on January 3rd, 2025 (1)
32
What's normal when it comes to changes in abilities?
Hi to all of you. I just stumbled onto this site. I don't know if it's normal to have a dramatic turn in abilities or memory or if it comes and goes quickly? My FIL started down this road last December. He has bouts of not knowing how old he is. He's 77 and he thinks he is 20 then 30 then 50. He has always worked right up to when he was hospitalized. One day he will be really good then the next he is hallucinating with animals running around in his room. He can be talking to you normally and the... more
Posted by: Susan Edwards on December 11th, 2024 (1)
28
Diagnosis of early-onset Alzheimers Action Plan (from personal experience)
Hello Community, I wanted to come here and post what I did when my father was first diagnosed with early-onset. This is my action plan and the steps we took. Please feel free to comment and add your suggestions and experiences. 1. Education (start by watching every single video available on this site). 2. Financial planning, consider your family, insurance and any work responsibilities you have. 3. Stay healthy. Join a gym, quit alcohol, improve your diet. 4. Use memory aids. Buy a cal... more
Posted by: Darla Brown on October 30th, 2024 (3)